Sunday, March 8, 2009

I found ACOR last week

So why I didn't know about this site earlier, I don't know. I think someone from the SA site mentioned it to me. I got on the liposarcoma mailing list and I can not believe all the e-mail exchanges, I am overwhelmed but in a good way. I am sharing all this info with my dad too.

What is true about sarcoma and a lot of cancers, is that each person's case is unique unto themselves and what works for some does not always work for others. That's the frustrating part, well there are A LOT of frustrating parts...but we try this and that and there is never a good answer, there are always just good guesses.

I am grateful for the ACOR website and I am grateful for weather that is feeling much more like spring too, with spring comes hope and new beginnings...a message I like to hold onto these days...


  1. When is your moms scan? Got fingers crossed for good results!

  2. I am glad that you are finding people to connect with.
    Spring is just around the corner!

  3. she is at the half way mark. Pain killers are messing with her, out of it, weak, lost 15 lbs since Nov. Trying to keep weight steady or put some more's a roller coaster. She has had some dry raspy throat, probably a side effect of Brivanib. One day at a time and trying to stay positive. How are you two doing?

  4. I am feeling very well. For juicers, I misspoke on Facebook. I have an Omega 8000 series masticating juicer. They are excellent but the real challenge for your mom is finding good, nutritious recipes for green juices that don't taste like grass :) If she's having trouble with digestion, papaya and pineapple is good. Beets, carrots, apple and dandelion are good for the liver. Omega 3 oils act on Cancer Cachexia and will help her keep weight on.